Author: Admin

Endoscopic surveillance and follow-up

Posted by on 5.16.21

The British Society of Gastroenterology published new medical guidelines in October 2019, for people who have an increased risk of bowel cancer due to inherited or genetic conditions. The Polyposis Syndromes were included in this document and it means a slightly different approach to our lower endoscopic screening (colonoscopy and flexible sigmoidoscopy screening). Please click […]

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Polyposis Information Day Cancelled and COVID19 update

Posted by on 5.16.21

We have made the difficult decision to cancel our annual patient information day in 2020. We had planned to hold our information day in October but as we are still discouraging all but essential visits to the hospital, we have decided to postpone until 2021. We are really sorry to disappoint anyone that was hoping […]

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New Information added to Resources – patient information

Posted by on 5.16.21

Please take a look at our resources section for updated information on managing strictures and adhesions and the St Mark’s E-mix recipe. Email us (LNWH-tr.smcfic@nhs.net) if you have any ideas for useful resources that we can add to our website. https://polyposisandlynch.com/2021/05/16/new-information-added-to-resources-patient-information/

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COVID-19 update (23rd March 2020)

Posted by on 5.16.21

Update – 23rd March 2020 The Registry nurses are likely to be redeployed to front line care over the next few days. We apologise if you have telephone appointments booked in the near future. There will be a skeleton staff here for the moment but please check the gov.uk website https://www.gov.uk/coronavirus for up-to date news regarding the […]

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The Polyposis Team were runners up in the ‘Team of the Year Award’

Posted by on 5.16.21

The Polyposis Registry team were shortlisted for Team of the Year in the 2020 LNWUH staff excellence awards. The awards ceremony was held on the 6th March at Wembley Stadium. The award on the night went to the emergency planning team – rightful winners during the current COVID19 pandemic. We had a lovely evening, however […]

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Next Polyposis Information Day – Saturday 14th September 2019

Posted by on 5.16.21

The Polyposis Registry Information DaySaturday 14th September 2019 Please join us! For patients with a diagnosis of a polyposis syndrome  and their families • Information provided to patients and relatives about polyposis in talks and informal sessions• Plenty of opportunity to ask questions in the Consultant Q+A session and to meet the team• Opportunity to meet other families […]

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Helen’s fundraising swim in aid of The Polyposis Registry!

Posted by on 5.16.21

On Friday 13 July one of our inspiring patients will be taking part in a 1.2 mile sea swim off the North Beach in Tenby (The Long Course Weekend Wales Swim). She is doing this to raise funds for the Polyposis Registry and will be accompanied by her friend Michael and brother Peter, both of whom have signed up to join her […]

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Next information day announced for Saturday 15th September 2018!

Posted by on 5.16.21

The Polyposis Registry Information DaySaturday 15th September 2018 For patients with a diagnosis of a polyposis syndrome  and their families • Information provided to patients and relatives about polyposis in talks and informal sessions• Plenty of opportunity to ask questions in the Consultant Q+A session and to meet the team• Opportunity to meet other families affected by polyposis• There […]

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